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General Discussions Discuss Not such good news :( in the Community Center forums; Well, we got the tests back, the MRI was negative for a tethered cord, but I understand that it is still a risk (it can show up as late as ...
  1. 04-27-2005, 04:53 PM #1
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    Not such good news :(

    Well, we got the tests back, the MRI was negative for a tethered cord, but I understand that it is still a risk (it can show up as late as adolesence)....

    However, this means that we have NO IDEA why MJ is losing skills and getting worse. We have an Appt with her ped tomorrow to discuss the next steps, sigh. She will need more tests and will also start to get fitted for her leg braces....
    Bonny June, Homeschooler, Webmaster and SNK/Adoption Advocate~~Marjorie June Mailani Adopted SNK, Disney Fanatic, Joyous, Cheerful, Incredible Kid~~Andrew, Cast Member, Disney Reservations Center~~Heart Mom to Cody (adoption loss 10-00)
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  2. 04-27-2005, 05:01 PM #2
    Tampa
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    wish I knew what to say to help, for there's not much I can do, and such heartache leaves me speechless.
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  3. 04-27-2005, 06:08 PM #3
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    I will pray for you and MJ.
    See YOU at Disney World,

    BDK

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  4. 04-27-2005, 07:37 PM #4
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    You are both in my thoughts and prayers!


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  5. 04-27-2005, 09:31 PM #5
    yoda_5729
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    I'm sorry... I hope everything goes well for you and your family....
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  6. 04-27-2005, 11:01 PM #6
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    WDW Donna
    WDW Donna is offline Much too far from the Magic :(
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    As a mother myself my heart goes out to you and your family. I hope all goes well.

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  7. 04-28-2005, 05:43 AM #7
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    Bonny, I understand that not knowing can sometimes be harder than knowing what is going on. I will be keeping you and MJ in my prayers and spreading lots and lots of pixie dust!
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  8. 04-28-2005, 07:01 AM #8
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    Bonny you,your husband and MJ are in my thoughts and prayer.Don't worry the Lord only gives you as much as you can handle. I know as a mom myself it hard to see your child in any pain so just keep postive thoughts and keep your faith and you will get through this.God Bless you all.




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  9. 04-28-2005, 10:46 AM #9
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    Best wishes for you and you family...you are in my and my family's prayers.
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  10. 04-28-2005, 11:43 AM #10
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    I am thinking of your family. I know how hard it is to watch your child struggle and not be able to take on that pain for them. Try to keep her mood up as best you can, and do the same for yourself. If good thoughts help, I am sending a bunch your way!
    I am in need of some Disney magic!!
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  11. 04-28-2005, 07:53 PM #11
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    Lou Mongello
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    Bonny,

    The thoughts and prayers of me and my family, as well as the entire DWT Family are with you, your little girl and family. You know the field I am in and if there is anything I can do in that regard, above and beyond sending you good thoughts and some :, please let me know.

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  12. 04-28-2005, 11:10 PM #12
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    You are in my thoughts and prayers. Good luck.
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  13. 04-28-2005, 11:28 PM #13
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    Bonny.... Haveing a sick child is never easy. As mothers we would do anything to take away the pain.

    You continue to be in my thoughts and prayers.
    Last edited by MickeyBabe; 04-29-2005 at 11:12 PM.
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  14. 04-29-2005, 08:51 AM #14
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    DO you have anymore info yet?
    See YOU at Disney World,

    BDK

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  15. 04-29-2005, 08:54 AM #15
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    Bonny, my prayers are with you & your family! Please continue to keep us updated. I'm sending good thoughts with some pixie dust your way.
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