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General Discussions Discuss Rough night for MJ and general update on us in the Community Center forums; 6-30-05 Well, I never thought it would happen, but the last half of our day at Disney yesterday was truly horrible, tho made better by some awesome CM's.... We went ...
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    MommytoMJM's Avatar
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    Bad Day for MJ at WDW Updated 6-30-05

    6-30-05

    Well, I never thought it would happen, but the last half of our day at Disney yesterday was truly horrible, tho made better by some awesome CM's....

    We went to AK with Dani (CM celebrating her 21st bday) She had never been and that part of the day was awesome. We got to take her backstage at LK and TR!, she got to take MJ up to dnace at LK, took her on the safari, they paid special attention to her in the parade. (I'll type my story about MJ and the parade later) It stared to rain....we walked out to the busses, we were going to go to MK and Dani had to go back home. MJ was very upset about her leaving so instead of Andrew leaving us on the bus and taking the car round to MK he rode with us. Things semed ok, but MJ was growing increasingly agitated (she has had some personality changes occuring that have been very troubleing lately) we tried to take her on the train (she said she wanted to go, then didn't for a few minutes) a nice CM (Gabe) spent soem time with her and she decided to go. We struggled with her on the train for the whole ride, she just wasn't happy at all and now she was starting to hit me, bite me, hit herself, etc. We got on the ferry and I struggled with her the whole way, I was holding her on my lap as I didn't want her to be scared and strapped in alone, but she was really clocking me. (She had no control over herself at all and it was so hard to watch I was in tears) At this point I realized that it was unsafe to take her on a bus with other people, so we had someone call for a manager. At this point she had really hurt me, so I had to give in and strap her in her chair, so she was really upset now and was hitting herself a lot. The manager (Terry) had a nursing degree (Thank G-d) so when we described what was happening he called for a private van to take us to AK to our car. We talked to him a lot about MJ and he gave her a pin (a bus transportation pin, she loves all WDW transportation) We got us all loaded in the van and met Dan, (our driver) he was awesome, he gave MJ a stuffed toy snake to play with and made us feel so good about this. I hated having to call and ask for help like this, normally she is soooo good in the parks, but since the seizures have started she has been very different. I was soooo grateful that if it happened anywhere it was there, the CM's were amazing all around. I don't know how we would have been able to deal with it otherwise. I am really scared about what MJ is going through and it helps so much to be surrounded on the boards and in the parks with people who are so worried about us and are praying for us. Once we got all loaded in the car, I gave Dan a hug and a CMA card (gave Terry one too) MJ was fast asleep by the time we hit 192 and has been ok today, I am sure her body is sore from the events (I know mine is) of yesterday, but she seems back to herself, July 13th (her neurology appt) can't come soon enough..... Thanks for caring everyone!
    __________________________________________________ ____
    She wasn't sleeping for some reason and only wanted me (Andrew ususally sleeps with her so I can sleep well to take care of her the next day) I don't know if it was mommy mode, lots of seizure activity, not feeling well or what.....since she can't tell me, it is kind of hard....

    Her Occupational Therapy Evaluation was postponed to July 13th. Her pre evaluation for her Wheelchair starts today....it will take several months to get since they are making it custom.....but it will meet her needs a lot better....

    Andrew is taking some time off so we can take her to WDW tomorrow to make her feel better.... lots of ppl there to love on her.

    My mom goes in on the 5th to have the heart catheterization that will decide what sort of surgery she needs....

    Heavy sigh......
    Last edited by MommytoMJM; 06-30-2005 at 01:26 PM. Reason: Updating
    Bonny June, Homeschooler, Webmaster and SNK/Adoption Advocate~~Marjorie June Mailani Adopted SNK, Disney Fanatic, Joyous, Cheerful, Incredible Kid~~Andrew, Cast Member, Disney Reservations Center~~Heart Mom to Cody (adoption loss 10-00)
    (linkie fixed...heh heh, thanks Val!)

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    SoupBone's Avatar
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    Wow...I hope all goes well for you. It must be a rough road for you guys. I guess we can be grateful that WDW exists and can give us all a little peace even if it is only for a short period of time. My thoughts and prayers are with your family.

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    DissyLove's Avatar
    DissyLove is offline Wendy's real. I've seen her, so don't even start with me.
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    Hang in there Bonny. I am thinking of you, try to keep your chin up. I am sure Mickey and the gang are helping MJ and you a bit... Keep us posted....
    I am in need of some Disney magic!!

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    iwannabeminnie is offline I'm old! I'm like the cryptkeeper!
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    Always thinking of MJ and your family. Lots of pixie dust and prayers headed your way from Indiana.
    They call me "Nana"

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    JEDIPRINCESS's Avatar
    JEDIPRINCESS is offline I'm going back to the World YAHOO
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    Smooches and Hugs to you guys. Don't worry Bonny there is a sliver lining in this.




    YES I"M GOING BACK AGAIN FOR HALLOWEEN

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    DissyLove's Avatar
    DissyLove is offline Wendy's real. I've seen her, so don't even start with me.
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    Bonny please keep us updated I am thinking of you all....
    I am in need of some Disney magic!!

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    vixen101485's Avatar
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    Hugs!!!!!!!!!!!!!!
    It's a Disney thing. If you understood, your only question would be "can I go?"



    TRICK OR TREAT FOR UNICEF
    FOR MORE INFO CLICK THIS LINK http://inside.unicefusa.org/goto/Meghyn

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    PumpkinJack81 is offline Some say to survive it you need to be as a mad as a hatter...
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    LOTS more , , and to you and MJ! And how about some for MJ too. Hope you had a nice day at :mickey: 's and MJ got lots of from everyone. I'm still remembering you in my prayers Bonny!
    ~Bobby Jack

    When you hear the knell of a requiem bell weird glows gleam where spirits dwell
    Restless bones etherealize rise as spooks of every size
    Grim grinning ghosts come out to socialize!





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    MommytoMJM's Avatar
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    Read first post for an update....
    Bonny June, Homeschooler, Webmaster and SNK/Adoption Advocate~~Marjorie June Mailani Adopted SNK, Disney Fanatic, Joyous, Cheerful, Incredible Kid~~Andrew, Cast Member, Disney Reservations Center~~Heart Mom to Cody (adoption loss 10-00)
    (linkie fixed...heh heh, thanks Val!)

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    Unhappy

    Aww I'm so sorry Bonny. We will be praying for you and MJ.

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    MommytoMJM's Avatar
    MommytoMJM is offline DisneyWorldTrivia Mod - Living Disney as a Lifestyle
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    Hiya lady! Can't wait for balckout dates to be over so I can go to WDW with you guys!
    Bonny June, Homeschooler, Webmaster and SNK/Adoption Advocate~~Marjorie June Mailani Adopted SNK, Disney Fanatic, Joyous, Cheerful, Incredible Kid~~Andrew, Cast Member, Disney Reservations Center~~Heart Mom to Cody (adoption loss 10-00)
    (linkie fixed...heh heh, thanks Val!)

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    HomeofLove4Him's Avatar
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    But of course!! Seriously, it really doesn't bother us to not go these 2mos of the summer because it RAINS *every darn day!* I can't imagine paying reg. price to get in, only to get rained out! But the blackout is over next month, so...

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    dzney4lyf's Avatar
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    gee.. sorry to hear all the bad news Bonny... brighter days are coming...

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    HomeofLove4Him's Avatar
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    That icecream was for MJ, btw LOL

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    MommytoMJM's Avatar
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    Quote Originally Posted by DisneyAPmama
    That icecream was for MJ, btw LOL
    Thanks, but I had to eat it...Ice Cream has corn it it! LOL
    Bonny June, Homeschooler, Webmaster and SNK/Adoption Advocate~~Marjorie June Mailani Adopted SNK, Disney Fanatic, Joyous, Cheerful, Incredible Kid~~Andrew, Cast Member, Disney Reservations Center~~Heart Mom to Cody (adoption loss 10-00)
    (linkie fixed...heh heh, thanks Val!)

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