MJM Update

**MommytoMJM** · 09-01-2005, 08:47 PM

Hi All......we are here. Praying that this doesn't jinx it, but MJ is scheduled (for the 5th time, I think) to have her Speech evaluation tomorrow at 3 pm. Speech therapy is critical for her, if we can't get communicating better with her, we will eventually reach a stage where we can't get any further with her due to communications issues. We are also oping to hear from a new OT soon (her current one isn't working for a variety of reasons)

Mike is working on settling in, there are bumps in the road like with any roomate situation, but we are trying to work through it.

MJ is having some reactions to her meds so we may have to change some of them, sigh. She will be going in for her MRI and EEG on the 30th, she will need general anesthesia for this which always makes me a mess.....you'd think I'd get used to it by now, but I never do.

As always, thank you for your thoughts and prayers.

We have been watching the coverage of the Gulf Coast in shock for four days and realize that as hard as things are for us, they could be SO much worse...our prayers go out to everyone in this region.

I will get pics from this weekend and pics of her pin boards up as soon as I can (Andrew is rearranging her pin boards right now.) I'll also update her character list (all on her blog)

**BelleGurl** · 09-01-2005, 08:50 PM

Prayers and thoughts are coming your way.

**disneydreamer98** · 09-02-2005, 07:21 AM

Originally Posted by MommytoMJM

.

We have been watching the coverage of the Gulf Coast in shock for four days and realize that as hard as things are for us, they could be SO much worse...our prayers go out to everyone in this region.

I cannot tell you how often I tell myself that things can always be worse. Sometimes it's hard to be grateful for what you have, been in the realm of things....usually what you have is much better than most!

Bonny, you know that I am always thinking of you guys and praying for you!

**zcook9** · 09-02-2005, 07:28 AM

Just remember Bonny, God will only give you what he knows you can handle, and no more. Pixie Dust being dropped your way

.

**dzney4lyf** · 09-02-2005, 07:54 AM

You will have my prayers....

**SnwhtNdwrfs** · 09-02-2005, 09:46 AM

Good luck today! I will be thinking of you both.

**rvastro** · 09-02-2005, 12:22 PM

I will try to pick everyone up tommorow when we meet up. Well, not physically pick up-but you get the point!

**MommytoMJM** · 09-02-2005, 09:09 PM

Hi all, we're home from the Speech Eval....it was a bit rough and she scored a lot lower than I thought she would...which means more therapy sessions a week and begs the questions of how much she will improve overall. She has always been ahead of the game on recpetive communication (what she understands) and waaay behind on communicative (what she can tell us) She is still way behind on communicative (1 1/2 years old she tests at) but her receptive is also at 1 1/2 years too.....Much lower than I expected. This means that she will need therapy 3 times a week (Which is 180.00 a month in co pays....sigh) and more than that in stress and wear on her...... All in all, I am a bit depressed about it...I wish the news was better, I always seem to forget how far she is behind until we are around other kids or until she is tested for something.

**luciansmommy** · 09-03-2005, 01:44 PM

Originally Posted by MommytoMJM

Hi All......we are here. Praying that this doesn't jinx it, but MJ is scheduled (for the 5th time, I think) to have her Speech evaluation tomorrow at 3 pm. Speech therapy is critical for her, if we can't get communicating better with her, we will eventually reach a stage where we can't get any further with her due to communications issues. We are also oping to hear from a new OT soon (her current one isn't working for a variety of reasons)

Mike is working on settling in, there are bumps in the road like with any roomate situation, but we are trying to work through it.

MJ is having some reactions to her meds so we may have to change some of them, sigh. She will be going in for her MRI and EEG on the 30th, she will need general anesthesia for this which always makes me a mess.....you'd think I'd get used to it by now, but I never do.

As always, thank you for your thoughts and prayers.

We have been watching the coverage of the Gulf Coast in shock for four days and realize that as hard as things are for us, they could be SO much worse...our prayers go out to everyone in this region.

I will get pics from this weekend and pics of her pin boards up as soon as I can (Andrew is rearranging her pin boards right now.) I'll also update her character list (all on her blog)

MommytoMJM,
Have they tried teaching her sign language? I am teaching my son and everyone thinks that it will set a child behind, it actually helps them connect the sign to the word and object.....End result, making pathways in the brain create themselves and helps to exercise the brain and develop smarter. I swear I am not making this up!! But I am not sure all of what is wrong in MJs case. I figured maybe it would be a connection that might help! Best of luck and all my prayers with your family!! She looks like such a sweet child and such a blessing to you guys!! Just hang on Bonny!! God gave her to you for a reason and He is behind you every step of the way in life! You are doing unto Him by having such a loving heart to give her a chance!! Just hang onto your baby and love her all you can!!